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Written by Lauren Knowles.
4 minute read
Aura‘s founder Paul Jameson was recently featured on ITV News.
In 2017, Paul received the life-altering diagnosis of motor neurone disease (MND). Doctors gave him as little as six months to live. But for Paul, that wasn’t the end, it was the beginning of a new, purpose-fuelled chapter.
Now, eight years later, Paul has completed an almighty bucket list, including singing an Aria at the Royal Ballet & Opera House, climbing Mount Blanc in the Alps and playing the world’s highest game of tennis on Mount Kilimanjaro, cycled epic distances around Lake Geneva, and raised thousands for MND research — all while living with a progressive, debilitating condition.
In a recent ITV News feature, Paul’s extraordinary journey was brought to national attention, inspiring viewers with his message of hope, resilience, and action.
Just days after his diagnosis, Paul made a decision: to live life at full speed.
Instead of retreating from the world, he pushed forward. Paul has since:
Climbed Mont Blanc in the Alps
Conquered Kilimanjaro in Africa
Cycled around Lake Geneva
Skydived, bungee jumped, and more — all while living with MND
Even now, using a wheelchair full-time, Paul continues to add to his ever-growing bucket list.
“The bucket list keeps on growing… and the challenges are becoming more and more outrageous.” – Duncan Foster, Paul’s friend
Paul’s tenacity has not only helped him defy the odds, but it’s also become a powerful force for change.
He’s raised over £250,000 for the Motor Neurone Disease Association, funding research, education, and community support for those affected by the disease.
“We need research. We need nurses. We need policy change. Paul’s showing the way for other fundraisers.” – Libby Hannelle, MND Association
Through it all, Paul remains humble, and deeply hopeful.
“There is always hope. You can have a very rewarding life, even with a debilitating illness like MND. Do I wish I didn’t have MND? Of course I do. Can I see the many positives to come out of this illness? I most certainly can. I have no complaints.” – Paul Jameson
Paul’s story is woven into the fabric of Aura. He founded Aura to offer families more peace of mind during some of life’s biggest challenges, and to do it with kindness, dignity and transparency.
At Aura, Paul’s fearless spirit continues to shape how we support our customers, lead our team and challenge a funeral industry in need of change.
In September, Paul will take on four Guinness World Record attempts at Dunsfold Aerodrome, including:
The fastest mile pushed in a wheelchair
The fastest wheelchair pulled by dogs
It’s another chapter in a story that refuses to follow the rules.
You can watch the full ITV News story here:
If you’ve been inspired by Paul’s journey, consider supporting the MND Association — a charity that’s doing life-changing work for people across the UK.
👉 Donate to the MND Association
Paul Jameson is the founder of Aura — a five-star-rated funeral plan and direct cremation provider with a mission to help families plan ahead with confidence. Diagnosed with motor neurone disease in 2017, Paul has since become a dedicated fundraiser, public speaker and advocate for living life to the fullest.